JScreen, an organization that encourages people to undergo testing for genetic diseases, has launched a campaign highlighting families who lost children to Tay-Sachs disease. Tay-Sachs is a rare ...
When people in the Jewish community think of genetic diseases, they usually think of Tay-Sachs disease. The most common form is infantile Tay-Sachs, in which symptoms start at around three to six ...
PASCO COUNTY, Fla. (WFLA) — For parents with children with Tay Sachs disease, there’s often little hope, no treatment, and no cure. It’s a rare and deadly disease that attacks the nerve cells in the ...
In a groundbreaking study, researchers at McMaster University have identified a potential treatment for Sandhoff and Tay-Sachs diseases—two rare, often fatal lysosomal storage disorders that cause ...
NORTH OAKS, Minn. & COLUMBUS, Ohio--(BUSINESS WIRE)--The New Hope Research Foundation, a nonprofit organization dedicated to finding a genetic cure for GM2 gangliosidosis (including Tay-Sachs disease) ...
Patients in a Phase I/II clinical trial conducted by UMass Chan Medical School of a dual vector gene therapy for GM2 gangliosidosis, which includes Tay-Sachs and Sandhoff diseases, exhibited a ...
After losing his son Drew to Tay-Sachs Disease in 2019, Adam Anderson’s life took on a new path. He ran for local office in Florida and became a leader in rare disease policy, creating a new genetic ...
Tay Sachs is a devastating genetic disease with no known cure. But now, experts are hoping a new push for awareness could help parents down the road.
A Florida state legislator sponsored the nation's first state-backed genetic screening program after his son died from a rare genetic disease.
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