Mar 24, 2026 · NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately …

NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …

Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.

Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy …

15 minutes ago · That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the …

Connect directly with NORD's dedicated team for personalized assistance, support, and information about rare disease resources and programs.

NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.

Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.

Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. We provide …