Nov 6, 2025 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …

NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …

What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease …

NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare …

NORD was the first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, …

Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …

NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.

May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and

Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is …

Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …